NFED Video

This is an AWESOME video that the NFED just released to kick off February and Ectodermal Dysplasias Awareness month. Please take a look at it (you'll see Tyler many times with his buddy Zemery and then Andrew, Grant, and my parents also made the video. It does an excellent job explaining what Ectodermal Dysplasias really are. As we are trying to raise awareness about these conditions, please share this with as many people as you can through blogs, facebook, emails, etc.

http://www.youtube.com/watch?v=REvzn1Uaq5s

With 2 children affected by Ectodermal Dysplasia syndromes, this organization has been a lifesaver for us. The people we've met are like family. This is an organization that is extremely important to our family. As a nonprofit organization, all funds are raised by individuals or the organization as a whole (which only employs 9 people). As their budget is more than a million dollars, this is a huge undertaking for everyone associated with the NFED. I would like to ask you to consider helping out our favorite charity by purchasing raffle tickets through us before Tyler's birthday on March 6. In fact, feel free to purchase tickets as a "gift" to Tyler for his birthday. They can be purchased individually for $1 or in books of 5 for $5. The earnings for tickets are as follows:
1st place - $1,000
2nd place - $300
3rd place - $200
AND, the person who sells the most tickets will receive a $300 voucher to the NFED Family Conference in Colorado Springs, CO this summer. To purchase tickets, let us know how many you would like by contacting us in one of the following ways:
cdrthux@mtelco.net
huxmand@usd423.org
DeAnn Huxman on facebook.com
620-345-2494
Checks can be mailed to:
Huxman's
11409 NW 72nd St.
Moundridge, KS 67107

We really appreciate all the support each of you give us, whether it is by purchasing tickets, prayer, or just your friendship and support. Thank you all!!!